Caregiving For ALS

Have you recently become a caregiver to someone with ALS?

I AM ALS provides a “Start Here” guide to help settle the emotions of individuals who have just begun their journey as a caregiver to someone with ALS. This article first provides its readers with six simple steps to start first. Later, you will learn the different types of care, how to communicate with health care providers, work and finance resources and advice, in-home support resources, and helpful tips to stay on track.



Need advice from one caretaker to another?

Listen to the advice of caregivers and their partners on preparing for the changes that come with living with ALS. Topics discussed include approaching difficult issues, speaking with children, being a young adult caregiver, and maintaining a sense of normal.


Are you handling stress and burnout well?

The ALS Association enlightens readers on how to deal with stress and burnout by practicing self-care. Throughout this article, you will learn different strategies for self-care, such as support groups for caregivers, watching for depressive symptoms, valuing yourself, and managing your stress.


Are you scheduling respite care on your agenda?

As defined by The ALS Association, “respite care simply means an interval of rest or relief.” Learn how to implement respite care into your life and the respite services that may be available to you below.


Are you seeking support groups, clinics, or respite care?

The ALS Association provides a one-stop shop for information on support groups, clinics, respite care, ALS educational material, and other helpful resources. Learn more about what the ALS Association has to offer you below.


Do you want to feel more confident as a caregiver?

The ALS Association offers a free caregiver education course! This course can be completed at your own pace and addresses “the physical and emotional impacts of ALS, interventions that may benefit a person living with ALS as well as those that may be harmful, the importance of safety and wellness for the person living with ALS and their caregivers, and strategies for care and resources to guide care decisions.” Upon completing this course, you will receive a Certificate of Completion and greater confidence for being a caregiver to someone with ALS!